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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Imagine feeling super tired all the time, even after sleeping! That's ME/CFS.

Images

Petition presentation by M.E Support in Glamorgan 16-9-2014 (15234526046)

Petition presentation by M.E Support in Glamorgan 16-9-2014 (15234526046)

openverse
Petition presentation by M.E Support in Glamorgan 16/9/2014
Petition presentation by M.E Support in Glamorgan 16/9/2014
QoL comparison ME-CFS
Myalgic encephalomyelitis-chronic fatigue syndrome
Petition presentation by M.E Support in Glamorgan 16/9/2014
Petition presentation by M.E Support in Glamorgan 16/9/2014
HRH Duchess of Kent at Governor's Residence Fernberg, Brisbane, 5 March 1992
Petition presentation by M.E Support in Glamorgan 16/9/2014
Petition presentation by M.E Support in Glamorgan
Cohort symptom presence and intensity for Myalgic Encephalomyelitis-Chronic Fatigue Syndrome
ME-CFS Incidence Rate by Age

Key Facts

Main Symptom
Profound fatigue that does not improve with rest.
Hallmark Symptom
Post-exertional malaise (PEM), a worsening of symptoms after minor activity.
Common Age Group
More common in middle age, but can affect all ages, including children.
Gender Difference
Occurs more often in women than in men.

What is this Mystery Illness?

ME/CFS is like a super-sneaky illness that makes people feel incredibly tired, all the time. It's not just feeling sleepy after a long day; it's a deep tiredness that doesn't go away, even if you sleep for many hours. People with ME/CFS also have trouble remembering things or concentrating, which can make schoolwork or playing games tricky.

It's a real challenge that affects how they feel and what they can do every day.

The Big 'Crash'!

The strangest part of ME/CFS is something called post-exertional malaise, or PEM. Imagine playing on the playground for a little while. For someone with ME/CFS, even that small amount of activity can cause a big 'crash'.

This crash makes them feel much worse, sometimes right away, and sometimes hours or even days later. This crash can last for a long time, making them feel too sick to do anything at all.

When Did This Start?

Scientists are still trying to figure out exactly why ME/CFS happens. It often starts after someone has an infection, like a bad cold or the flu. Sometimes, it seems to run in families, like having the same eye color as your mom or dad. Doctors look at the symptoms to figure out if someone has ME/CFS because there isn't one special test, like a blood test, that can say for sure.

Living with ME/CFS

ME/CFS can be tough because it's hard to get better completely. Doctors try to help people feel better by managing their symptoms. One important way to help is called 'pacing'. This means learning how much activity you can do without causing a big crash. It's like learning your own limits so you don't overdo it. It can be a bit lonely sometimes, but people with ME/CFS are strong and brave.

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